Welcome to our resource pages. Over the years, we have collected information that we have found to be helpful in stroke recovery. Although Retreat & Refresh Stroke Camp is providing the following resources, we do not endorse any particular book, author, service or product. It is our hope you will find these resources helpful.
Book List
Rehab & Recovery
- The Stroke Recovery Book: A Guide for Patients and Families, by Kip Burkman, M.D.
- How To Conquer the World with One Hand...and An Attitude, by Paul E. Berger and Stephanie Mensh
- How To Conquer Hobbies with One Hand: 50 Tips and Tools to Make Things, by Paul E. Berger and Stephanie Mensh
- One-Handed in a Two-Handed World, by Tommye-Karen Mayer
- After a Stroke: 300 Tips for Making Life Easier, by Cleo Hutton
- The Brain that Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science, by Norman Doidge, M.D.
- Hope: A Stroke Recovery Guide, by the National Stroke Association, order a bound copy by calling 1-800-STROKES or go online www.stroke.org to download and print a free copy
- 100 Questions & Answers About Stroke: A Lahey Clinic Guide, by Kinan K. Hreib, M.D., Ph.D.
Books for Survivors
- Different Strokes: An Intimate Memoir for Stroke Survivors, Families, and Caregivers, by Steven Boorstein www.survivingstroke.com
- Like A Bolt: Tragedy to Triumph After Stroke As I Lived It, by Mary Morgan
- Stroke, Brain Assault, by Madelina A. DePaz
- Take Brave Steps For Stroke Survivors and Families: A Message of Motivation and Hope, by Ron Gardner
- My Stroke of Insight: A Brain Scientist's Personal Journey, by Jill Bolte Taylor, Ph.D.
- I'll Carry the Fork! Recovering a Life After Brain Injury, by Kara L. Swanson
- My Year Off: Recovering Life After a Stroke, by Robert McCrum
- Rewire Your Brain, Rewire Your Life: A Handbook for Stroke Survivors & Their Caregivers, by Bob Guns
- Stroke Diaries: A Guide for Survivors and their families, by Olajide Williams, MD
- The Fire Within: A True Story of Triumph Over Tragedy, by Valerie L. Green
- A Stroke of Genius: Messages of Hope and Healing From a Thriving Stroke Survivor, by Sandy Simon
- Don't Leave Me This Way: Or When I Get Back on My Feet You'll Be Sorry, by Julia Fox Garrison
- A Piece of Her Mind: A Mother-Daughter Journey Through Stroke and Recovery, by Mona Gupton and Stacy Gupton
- Into the Blue: A Father's Flight and A Daughter's Return, by Susan Edsall
Books for Caregivers
- Who Cares: A Loving Guide for My Future Caregivers, by Dee Marrella
- The Comfort of Home for Stroke: A Guide for Caregivers, by Maria M. Meyer and Paula Derr, RN with Jon Caswell, Stroke Connection Magazine
- Living With Stroke: A Guide for Families, by Richard Senelick, M.D., and Karla Dougherty
- The Magic of Humor in Caregiving, by James R. Sherman, Ph.D.
- Positive Caregiver Attitudes, by James R. Sherman, Ph.D.
- Creative Caregiving, by James R. Sherman, Ph.D.
- The Tough & Tender Caregiver: A Handbook for the Well Spouse, by David A. Travland, Ph.D. and Rhonda Travland
- Nursing Homes and Assisted Living: The Family's Guide to Making Decisions and Getting Good Care, by Peter S. Silin
- When The Time Comes: Families with Aging Parents Share Their Struggles and Solutions, by Paula Span
- Lessons from the Ancients: A Humorously Helpful Guide for Caregiving, by J. Dyess Calhoun
- Passages in Caregiving: Turning Chaos into Confidence, by Gail Sheehy
- To Love What Is: A Marriage Transformed, by Alix Kates Shulman
- Eureka! Memories and Motivations: A Strategy for Creating a Healing Home for the Stroke/Brain Injury Patient and Caregiver, by Madonna Siles C.P.C.
- Port in The Storm: How to Make a Medical Decision and Live to Tell About It, by Cole A. Giller, M.D., Ph.D.
- Brain, Heal Thyself: A Caregiver's New Approach to Recovery from Stroke, Aneurysm, and Traumatic Brain Injuries by Madonna Siles
- Share the Care, by Cappy Capossela and Sheila Warnock
- Coping with Stroke: 50 Answers to Everyday Caregiver Challenges, by Monica Vest Wheeler
Children's Books
- Now One Foot, Now the Other, by Tomie dePaola
- Beamer Learns the Signs of Stroke and How to Help, by Cindy Chambers
Books on Aphasia
- Talking About Aphasia, by Susie Parr, Sally Byng, and Sue Gilpin with Chris Ireland
- Barkin' Dog: How to Talk with Aphasia, by Ed Bas
- A Mind of My Own: Memoir of Recovery from Aphasia, by Harrianne Mills
Inspirational Books (not necessarily stroke specific)
- You Can Do It! 105 Thoughts, Feelings and Solutions to Inspire You, By Paul Berger and Stephanie Mensh
- The Power of Attitude, by Mac Anderson
- The Blue Day Book: A Lesson in Cheering Yourself Up, by Bradley Trevor Greive
- Loving What Is: Four Questions that can Change Your Life, by Byron Katie with Stephen Mitchell
- The Ten Things to Do When Your Life Falls Apart: An Emotional and Spiritual Handbook, by Daphne Rose Kingma
- In Praise of Slowness: Challenging the Cult of Speed, by Carl Honore
- The Diving Bell and the Butterfly, by Jean-Dominique Bauby
Finances
- Nolo's Guide to Social Security Disability: Getting & Keeping Your Benefits by David A. Morton III, M.D.
- How To Get SSI and Social Security Disability: An insider's Step by Step Guide, by Mike Davis.
Online Support
- American Stroke Association is solely focused on reducing disability and death from stroke.
- Annuity.org is a non profit educating people on annuities as well as provide information to watch for scams that may occur within the industry.
- Assistedliving.org This guide helps those searching for assisted living homes overcome the two main barriers: choosing a home and figuring out how to pay for it. In this guide, you will learn about the different types of assisted living homes, how to choose the right home for you, how to pay for that home, and state-specific resources to assist you in your search.
- ACLS.net Founded in 2010, ACLS Certification Institute is the largest online provider of emergency life support certification training. Thousands of healthcare professionals have successfully earned and maintained their certifications through our programs.
- Caregiver.com is a leading provider of information, support, and guidance for family and professional caregivers, it is "For About and By Caregivers". The website includes topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver magazine, chat rooms, and an online store.
- Caregiver Action Network is a resource for caregivers of all types
- Caregiverstress.com is full of caregiving tips, assessments, and also provides caregiver solutions through their Home Instead Senior Care services.
- Caregiving.org is a website by the National Alliance for Caregiving, a nonprofit coalition of national organizations focusing on issues of family caregiving.
- Carepartnersresource.com is run by a Stroke Camp volunteer who has attended camp for five years, and who was a long time caregiver for her mother, a stroke survivor, and her father. She is a certified Journal to the Self instructor and offers both online and in person journaling classes for caregivers.
- Consumersafety.org We provide consumers with the information to lead safe, healthy, and happy lives.
- Healthycaregiver.com The Healthy Caregiver Community Foundation is dedicated to building better communities.
- Marc Whitehead & Associates Guide to disability claims
- Mattressadvisor.com Easy access to a good night's sleep is a right everyone should have. Learn how to modify a bedroom to be disability-friendly at Mattress Advisor.
- National Aphasia Association The National Aphasia Association (NAA) is a nonprofit organization that promotes public education, research, rehabilitation, and support services to assist people with aphasia and their families.
- National Stroke Association offers in-depth information including stroke symptoms and prevention, as well as recovery and caregiver support. Visit the website to sign up for Stroke Smart Magazine.
- Stroke Support Group with Flint Rehab Surround yourself with others on the same mission as you.
- Stroke Survivors Empowering Each Other provides an active voice for Illinois stroke survivors and the people in their lives.
- The Stroke Network provides online stroke support and information to survivors and caregivers.
- Stroke Wise Blog a blog created by a stroke survivor with information on all topics related to stroke and additional online resources.
Recovery Resources
Adaptive Equipment and Home Solutions
- Access to Recreation - Adaptive Recreation Equipment for the Physically Challenged. Exercise equipment, adaptive chairs, recreational equipment for sewing, gardening, hobbies, typing, and transportation. (www.accesstr.com)
- ACLS Health Library: Hypertension (High Blood Pressure) Founded in 2010, ACLS Certification Institute is the largest online provider of emergency life support certification training. Thousands of healthcare professionals have successfully earned and maintained their certifications through our programs.
- Bioness has products that use Functional Electrical Stimulation to help people with foot drop and hand paralysis regain mobility and independence to improve quality of life and productivity. (www.bioness.com)
- Consumer Affairs Looking for an unbiased intermediary between companies and consumers. This guide is a simple tool that will help you research adjustable beds when interested in purchasing one. Guides, including the adjustable bed guide, are 100% free for anyone to use and access. The guide includes brands like Reverie and Easy Rest, leading manufacturers of adjustable beds with features for every need. The guide was developed to help people compare different features and brands as well as see reviews from people who have bought the beds to determine what will work best for them. (https://www.consumeraffairs.com/furniture/adjustable-beds/)
- Dr. Leonard's -Healthcare items, socks, shoes, clothing, creams, etc.(www.drleonards.com)
- Feel Good Store has products to help you look and feel your best (www.feelgoodstore.com)
- FlintRehab Tools to spark recovery. (www.flintrehab.com)
- Fresh Finds has affordable kitchen & home solutions (www.freshfinds.com)
- Gold Violin-Independent Living -helpful products for those with challenges (www.goldviolin.com)
- Make Life Easier has handy gadgets and tools (www.make-life-easier.com)
- Marc Whitehead & Associates Guide to disability claims
- Patterson Medical Enrichments has adaptive equipment to help with all aspects of daily life (www.pattersonmedical.com)
- Solutions has products that make life easier and can be found at (www.solutions.com)
- Stroke Rehab is a site with adaptive equipment and a wealth of information for the survivor and caregiver about rehab, treatment, and recovery (www.stroke-rehab.com), this is an online resource
- StrokeEngine has a wealth of information about all topics stroke related (www.strokengine.ca)
- The Mobility Resource is a place for handicapped vans and equipment. (www.themobilityresource.com)
- The Wright Stuff has mobility and daily living aids (www.thewright-stuff.com)
- Whatever Works has a variety of helpful everyday products (www.whateverworks.com)
Speech Software
- Bungalow Software - Speech and Language Software designed and tested by speech therapists. Computer based for word retrieval, articulation, reading comprehension, memory, logic and reasoning, aphasia, apraxia, cognitive deficits, dysarthria, and more. Downloadable trial available. (www.bungalowsoftware.com)
- Tactus Therapy Solutions -has a 12 page list of apps (http://tactustherapy.com/adultapplist.pdf)
Stroke Associations Offering Support & Information
- National Stroke Association offers in-depth information including stroke symptoms and prevention, as well as recovery and caregiver support. Visit the website to sign up for Stroke Smart Magazine. (www.stroke.org)
- National Institute of Neurological Disorders and Stroke has many useful links to other stroke resources and information (https://www.ninds.nih.gov/health-information/disorders/stroke)
- National Aphasia Association The National Aphasia Association (NAA) is a nonprofit organization that promotes public education, research, rehabilitation, and support services to assist people with aphasia and their families. (www.aphasia.org)
Newsletters, Magazines, Etc.
- Stroke Connection Magazine provided by American Stroke Association.
- Neurology Now Magazine provided by American Academy of Neurology is available free of charge to individuals with a neurologic disorder, their caregivers, and family members/friends residing in the U.S. only.